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Topic: Hirschsprung's Disease

1. Brochure: Hirschsprung's Disease

   803

   By: Jacob C. Langer, MD; International Foundation for Functional Gastrointestinal Disorders IFFGD

   This fact sheet was written to answer questions about Hirschsprung's disease, treatment, surgery, and follow up.

   Topics: Anal, Rectal Disorders, Constipation, difficult to pass stools, Hirschsprung's Disease, Motility
   Non-Member Price: $0.99

2. Fact Sheet: Colon Manometry: Questions and Answers

   812

   By: Carlo DiLorenzo, MD

   Your child is scheduled for a specialized test called colon manometry that will check the motility of the colon. This guide will help to prepare you and your child so that the experience is as successful as it can be.

   Topics: Anal, Rectal Disorders, Colonic inertia, Pseudo-obstruction, Hirschsprung's Disease, Motility, Tests, lower GI tract
   Non-Member Price: $0.99

3. Fact Sheet: Disorders of Defecation in Children: What is the Role of the Surgeon?

   816

   By: Jacob C. Langer, MD

   When a new baby is born, we assume that he or she will spend most of the first few months of life engaged in a small number of basic activities: sleeping, feeding, peeing, and pooping. The passage of waste is a basic function of all living organisms, which is so ingrained and routine that most of us do not even think twice about it. The inability to defecate in children is usually due either to a problem with formation of the anus or with the inability of the colon to push the stool from one end to the other (Hirschsprung's disease and other motility disorders).

   Topics: Anal, Rectal Disorders, Fecal soiling, incontinence, Hirschsprung's Disease, Incontinence
   Non-Member Price: $0.99

4. Fact Sheet: Defecation Disorders after Surgery for Hirschsprung's Disease

   830

   By: Paul E. Hyman, MD

   Over 1,000 new cases of Hirschsprung's disease are diagnosed in the USA every year. More than half the children treated appropriately with surgery for Hirschsprung's disease suffer from chronic problems with constipation, incontinence, and/or abdominal pain. Even as adults, over half will experience occasional episodes of incontinence, and 10% will endure constipation unresponsive to medical management. Nonetheless, adjustment for teenagers and young adults with Hirschsprung's disease is not different than for healthy children; successful adjustment depends largely on family support. Revised and updated 2009.

   Topics: Anal, Rectal Disorders, Constipation, difficult to pass stools, Constipation, difficult to pass stools, Fecal soiling, incontinence, Hirschsprung's Disease, Incontinence, Motility
   Non-Member Price: $0.99

5. Fact Sheet: Hirschsprung’s Disease in Children and Adults

   839

   By: Samuel Nurko, MD, MPH

   Hirschsprung’s disease is an illness that people are born with (congenital), in which there is a lack of nerve cells (ganglion cells) in the segments of the intestinal tract located in the colon or rectum. Since the first operative curative technique for Hirschsprung’s disease was described in 1948, progress in diagnostic methods and surgical techniques have allowed the survival and successful treatment of most children with Hirschsprung’s disease. In spite of these advances, postoperative problems continue to occur. Recently, research has produced a better understanding of the disease, knowledge that will undoubtedly lead to further refinements of the surgical techniques and better treatment of these patients.

   Topics: Hirschsprung's Disease, Motility
   Non-Member Price: $0.99

6. Fact Sheet: Bowel Problems in Adults After Surgical Treatment for Childhood Hirschsprung’s Disease

   840

   By: Kasaya Tantiphlachiva, MD; Satish S.C. Rao, MD, PhD, FRCP (LON)

   Hirschsprung’s disease is a rare illness that people are born with (congenital). It occurs annually in about 1 in 5,000 live births. In Hirschsprung’s disease there is a lack of nerve cells (ganglion cells) in segments of the intestinal tract located in the colon and/or rectum.

   The treatment is surgery to remove the abnormal bowel segment and restore bowel continuity. Following surgical treatment, most children have a good outcome, but some have persistent bowel problems such as constipation, soiling, fecal incontinence, and inflammation in the colon (enterocolitis). These symptoms can impact the quality of life, which also needs to be addressed.

   Topics: Constipation, difficult to pass stools, Hirschsprung's Disease, Incontinence, Motility
   Non-Member Price: $0.99